The introduction of the IBD Disk in Poland - a new tool for assessing disability in patients with inflammatory bowel disease

Piotr Eder; Ariel Liebert; Michał Łodyga; Magdalena Kaniewska; Maria Kłopocka; Grażyna Rydzewska; Agnieszka Dobrowolska; Subrata Ghosh

doi:10.5114/pg.2019.85337

The introduction of the IBD Disk in Poland - a new tool for assessing disability in patients with inflammatory bowel disease

Prz Gastroenterol. 2020;15(1):55-59. doi: 10.5114/pg.2019.85337. Epub 2019 May 29.

Authors

Piotr Eder¹, Ariel Liebert², Michał Łodyga³, Magdalena Kaniewska³, Maria Kłopocka², Grażyna Rydzewska^{3

4}, Agnieszka Dobrowolska¹, Subrata Ghosh⁵

Affiliations

¹ Department of Gastroenterology, Dietetics, and Internal Diseases, Poznan University of Medical Sciences, H. Święcicki University Hospital, Poznan, Poland.
² Department of Gastroenterology and Nutritional Disorders, Collegium Medicum in Bydgoszcz, Nicolaus Copernicus University in Torun, Poland.
³ Department of Gastroenterology with IBD Subdivision of the Central Clinical Hospital of Ministry of Internal Affairs, Warsaw, Poland.
⁴ Faculty of Health Sciences, Jan Kochanowski University, Kielce, Poland.
⁵ Institute of Translational Medicine, College of Medical and Dental Sciences, University of Birmingham, Birmingham, United Kingdom.

Abstract

Introduction: Inflammatory bowel disease (IBD) is a chronic disorder of the gastrointestinal tract, which can significantly deteriorate everyday functioning. We are, however, still lacking simple methods to assess the influence of IBD on patients' disability. IBD Disk is a new graphical tool that allows for a quick assessment of the influence of IBD on different aspects of everyday life.

Aim: To present the adaptation process of the IBD Disk in Poland.

Material and methods: The Polish IBD Working Group together with the Institute of Translational Medicine in Birmingham (United Kingdom) and a professional translational agency performed a translation and re-translation of the Polish version of the IBD Disk. After full agreement was achieved, the final Polish version was accepted. In the next step, its understandability and ease of use was assessed by using a semiquantitative scale (scale from 1 to 10, where "1" means very easy to use, "10" means - very difficult to use).

Results: In the initial translation phase, the concordance between translation agency and experts was very high. In the re-translation phase only some stylistic and grammatical corrections were made. In the final step the general assessment of understandability of all items of the tool was high. Moreover, patients with IBD assessed the ease of use of the IBD Disk as very easy (median: 1.5 points, 95% confidence interval: 1.0-2.0).

Conclusions: The Polish adaptation of IBD Disk directly reflects the original English version. Thus, it can be further used in the validation process among Polish IBD patients.

Keywords: disability; inflammatory bowel disease; translation.