Stakeholder-driven approach to developing a peer-mentoring intervention for young adults with intellectual/developmental disabilities and co-occurring mental health conditions

J Appl Res Intellect Disabil. 2020 Sep;33(5):992-1004. doi: 10.1111/jar.12721. Epub 2020 Mar 2.

Abstract

Background: Young adults with intellectual/developmental disabilities and co-occurring mental health conditions (IDD-MH) experience significant mental health disparities. Barriers to services include transportation and stigma associated with services. Peer mentoring (PM) may be one solution to these barriers.

Methods: We conducted exploratory research to develop a PM intervention for young adults with IDD-MH by partnering with 3 young adults with IDD-MH and a seven-member advisory board. In addition, we conducted focus groups with mental health clinicians (n = 10), peer providers (n = 9), and transition specialists (n = 20) to identify the desired PM outcomes and features and content that may facilitate these outcomes.

Results: Prioritized outcome: identifying and utilizing leisure activities as coping strategies. PM features: mentors should use relationship- and outcome-driven actions to operationalize a mentee-centred approach. Features and content considerations: safety, mentor matching, degree of structure, mentor training and support, and collaboration with mentees' support teams.

Discussion: Findings are aligned with previous research on PM.

Keywords: developmental disability; inclusive research; intellectual disability; mental health; participatory research.

MeSH terms

  • Child
  • Developmental Disabilities
  • Humans
  • Intellectual Disability*
  • Mental Health
  • Mentoring*
  • Mentors
  • Young Adult