Global Experience of Diabetes Registries: A Systematic Review

Adv Exp Med Biol. 2021:1307:441-455. doi: 10.1007/5584_2020_493.

Abstract

Introduction: Diabetes mellitus (DM) is as a chronic metabolic disease, and disease registry plays an important role in the care of diabetes. Systematic review of diabetes registry systems in different countries has not been conducted based on evidences. This study conducts a systematic review to determine the goals, data elements, reports, data sources and capabilities of diabetes registry systems.

Method: In this study, searches were conducted in four databases such as PubMed, Scopus, Web of Science and Embase to find available information on diabetes registry systems. Two researchers conducted the search separately to identify related studies based on an input criterion. All controversies were resolved by the consensus.

Results: 18,534 studies were identified in the primary search. After reviewing the title and abstract of the articles, 11,344 studies were excluded. Finally, 21 studies were selected for the review. The main characteristics of the diabetes registries have been cited in the study under the categories of country's name with registry, title of the system, data sources and system developers. The information management is considered as the main goal of diabetes registry system. Data elements of diabetes registry were laboratory measurement and chronic complications.

Conclusion: This systematic review provides a global overview of the goals, data elements, reports, data sources and capabilities of the diabetes registries and recommends the use of diabetes registry to increase efficiency of services and quality of care.

Keywords: Diabetes; Diabetes mellitus; Diabetes registry; Disease registry; Registries.

Publication types

  • Systematic Review

MeSH terms

  • Databases, Factual
  • Diabetes Mellitus* / epidemiology
  • Humans
  • Information Storage and Retrieval
  • Registries*