Social Connections Among Siblings With and Without Intellectual Disability or Autism

Intellect Dev Disabil. 2020 Feb;58(1):19-33. doi: 10.1352/1934-9556-58.1.19.

Abstract

Although the significance of sibling relationships is widely affirmed, little is known about these relationships in young adulthood. In this study, we examined the experiences and perspectives of 155 siblings (ages 18-30) of individuals with intellectual disability or autism. Our focus was on how young adults spend time with their brother or sister with a disability, the ways in which they view their relationship, and the expectations they hold for the future. We found that most siblings spent time together engaging in a wide range of activities, described their relationships as of high quality, and held varied expectations regarding their brother's or sister's future. Several factors were associated with more time spent together and higher quality relationships. We address implications for practice and suggest future directions for research.

Keywords: community inclusion; expectations; families; relationships; siblings; young adults.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Adolescent
  • Adult
  • Autistic Disorder / psychology*
  • Female
  • Humans
  • Intellectual Disability / psychology*
  • Male
  • Sibling Relations*
  • Siblings / psychology*
  • Surveys and Questionnaires
  • Young Adult