Transition to adult care for young people with cerebral palsy

Lisa L Myers; Arany Nerminathan; Dominic A Fitzgerald; Jimmy Chien; Anna Middleton; Mary-Clare Waugh; Simon Paul Paget

doi:10.1016/j.prrv.2019.12.002

Transition to adult care for young people with cerebral palsy

Paediatr Respir Rev. 2020 Feb:33:16-23. doi: 10.1016/j.prrv.2019.12.002. Epub 2019 Dec 10.

Authors

Lisa L Myers¹, Arany Nerminathan², Dominic A Fitzgerald³, Jimmy Chien⁴, Anna Middleton⁵, Mary-Clare Waugh⁶, Simon Paul Paget⁶

Affiliations

¹ Kids Rehab, The Children's Hospital at Westmead, Sydney, NSW, Australia. Electronic address: drllmyers@gmail.com.
² Department of General Paediatrics, The Children's Hospital at Westmead, Sydney, NSW, Australia.
³ Department of Respiratory Medicine, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.
⁴ Department of Respiratory and Sleep Medicine, Westmead Hospital, Westmead, Sydney, NSW, Australia; Discipline of Medicine, Sydney Medical School, University of Sydney, NSW, Australia.
⁵ Physiotherapy Department, The Children's Hospital at Westmead, Sydney, NSW, Australia.
⁶ Kids Rehab, The Children's Hospital at Westmead, Sydney, NSW, Australia; Discipline of Child and Adolescent Health, Sydney Medical School, University of Sydney, Sydney, NSW, Australia.

PMID: 31987717
DOI: 10.1016/j.prrv.2019.12.002

Abstract

Cerebral palsy (CP) is associated with a high burden of comorbid respiratory disease subsequent to multiple risk factors associated with increasing levels of disability. Correspondingly, respiratory disease is the leading cause of death in CP, including amongst young people who are transitioning or who have just transitioned between paediatric and adult healthcare services. Therefore, consideration of both preventive and therapeutic respiratory management is integral to transition in patients with CP, as summarised in this review.

Keywords: Cerebral palsy; Respiratory tract disease; Transition to adult care.

Publication types

Review

MeSH terms

Advance Care Planning
Cerebral Palsy / complications
Cerebral Palsy / physiopathology
Cerebral Palsy / therapy*
Epilepsy / complications
Epilepsy / therapy*
Gastroesophageal Reflux / complications
Gastroesophageal Reflux / therapy
Humans
Kyphosis / complications
Kyphosis / therapy*
Noninvasive Ventilation
Pneumonia, Aspiration / etiology
Pneumonia, Aspiration / prevention & control
Pulmonary Medicine*
Respiratory Tract Diseases / etiology
Respiratory Tract Diseases / prevention & control
Respiratory Tract Diseases / therapy*
Scoliosis / complications
Scoliosis / therapy*
Sleep Apnea, Obstructive / etiology
Sleep Apnea, Obstructive / therapy
Transition to Adult Care*
Transitional Care*