Patient advocacy in head and neck cancer: Realities, challenges and the role of the multi-disciplinary team

Camilla Dawson; Justin Roe; Heather Starmer; Grainne Brady; Rebecca Nund; Margaret Coffey; Roganie Govender; Jo M Patterson; Paul Nankivell; Annie Topping; Neil Sharma; Sat Parmar; Chris Elkington; Malcolm Merrit; David Stanbury; Paul Pracy

doi:10.1111/coa.13508

Patient advocacy in head and neck cancer: Realities, challenges and the role of the multi-disciplinary team

Clin Otolaryngol. 2020 Jul;45(4):437-444. doi: 10.1111/coa.13508. Epub 2020 Feb 6.

Authors

Camilla Dawson¹, Justin Roe^{2

3

4}, Heather Starmer⁵, Grainne Brady⁶, Rebecca Nund⁷, Margaret Coffey⁸, Roganie Govender⁹, Jo M Patterson¹⁰, Paul Nankivell¹, Annie Topping¹¹, Neil Sharma¹, Sat Parmar¹, Chris Elkington¹², Malcolm Merrit¹², David Stanbury¹², Paul Pracy¹

Affiliations

¹ Queen Elizabeth Hospital Birmingham, Birmingham, UK.
² Department of Speech & Language Therapy, The Royal Marsden NHS Foundation Trust, London, UK.
³ Department of Surgery and Cancer, Imperial College Healthcare NHS Trust, London, UK.
⁴ National Centre for Airway Reconstruction, Imperial College Healthcare Trust, London, UK.
⁵ Department of Otolaryngology and Head and Neck Cancer, Speech and Swallowing Rehabilitation, Stanford Cancer Center, CA, USA.
⁶ Department of Speech and Language Therapy, The Royal Marsden NHS Foundation Trust, London, UK.
⁷ School of Health and Rehabilitation Sciences, The University of Queensland, Brisbane, Qld., Australia.
⁸ Imperial College Healthcare NHS Trust, London, UK.
⁹ University College London Hospital NHS Foundation Trust, London, UK.
¹⁰ University of Liverpool, Liverpool, UK.
¹¹ University of Birmingham, Birmingham, UK.
¹² Head and Neck Cancer U.K., Birmingham, UK.

PMID: 31971339
DOI: 10.1111/coa.13508

Abstract

This paper explores the concept of advocacy in head and neck cancer. We define inherent challenges in the development and success of advocacy within this context and offer ways to embed it within clinical practice. We outline what advocacy is, ways in which it may benefit people with head and neck cancer and the engagement required from healthcare professionals to facilitate advocacy to improve outcomes.

Publication types

Editorial
Research Support, Non-U.S. Gov't

MeSH terms

Head and Neck Neoplasms / therapy*
Humans
Organizational Culture
Patient Advocacy*
Patient Care Team*

Grants and funding

CDRF-2013-04-020/DH_/Department of Health/United Kingdom