Effects of supporting patients with dementia: A study with dyads

Perspect Psychiatr Care. 2020 Jul;56(3):614-620. doi: 10.1111/ppc.12476. Epub 2020 Jan 22.

Abstract

Purpose: This study aimed to examine the factors associated with the development of higher burden in informal caregivers of patients with dementia, using dyadic data.

Design and methods: Seventy-two dyads of patients with dementia and their informal caregivers were assessed, the former in terms of behavioral-psychological symptoms and autonomy, the latter in terms of burden and individual needs.

Findings: Caregivers at risk for developing higher burden are those who are female, whose care recipient present psychiatric symptoms and lower autonomy, and those who recognize the need for more information/support.

Practice implications: Interventions should offer caregivers the tools to provide care, maintaining their psychological well-being. Interventions should target not only common aspects of caregiver burden but also the specificities of caring for a person with dementia.

Keywords: autonomy; behavioral symptoms; burden; dementia; informal caregivers.

MeSH terms

  • Caregiver Burden*
  • Caregivers / psychology*
  • Dementia*
  • Female
  • Humans
  • Male