Mixed methods protocol for a realist evaluation of electronic personal health records design features and use to support medication adherence (ePHRma)

BMJ Health Care Inform. 2020 Jan;27(1):e100046. doi: 10.1136/bmjhci-2019-100046.

Abstract

Background: National Health Service policy suggests that increasing usage of electronic personal health records (PHR) by patients will result in cost savings and improved public health. Medication adherence means that patients take their prescribed medication as agreed with their doctors. Some of the claimed benefits of PHRs are decreasing healthcare costs and improving medication adherence and patient outcomes.

Methods: This is a mixed methods convergent study, primarily qualitative. The qualitative and quantitative data collection and analysis will occur in parallel, and then be synthesised. We are interviewing and surveying adults with long-term conditions to identify what are the most important and useful features of their current PHR. The data collection comprises patient demographics, the Medication Adherence Questionnaire, the personality scale Big Five Inventory-2 Extra-Short Form and the WHO Quality of Life-BREF scale. Qualitative data will be analysed using the Framework method.

Ethics: We have received a favourable ethical opinion from the Health Research Authority/Research Ethics Committee.

Keywords: medical informatics; patient care; primary health care; public health; record systems.

Publication types

  • Evaluation Study

MeSH terms

  • Adolescent
  • Adult
  • Female
  • Health Records, Personal*
  • Humans
  • Interviews as Topic
  • Male
  • Medication Adherence*
  • Middle Aged
  • Qualitative Research
  • Software Design*
  • Surveys and Questionnaires
  • Young Adult