Quality of Life in School-Aged Youth Referred to an Autism Specialty Clinic: A Latent Profile Analysis

J Autism Dev Disord. 2020 Apr;50(4):1269-1280. doi: 10.1007/s10803-019-04353-x.

Abstract

We examined whether different profiles of quality of life (QoL) existed among youth referred to an autism spectrum disorder (ASD) specialty clinic and, if present, determined if these groups were associated with different characteristics. Data were from parental report of 5-17 year-old youth (N = 476) who were scheduled to receive an evaluation at an ASD clinic. Parents completed questionnaires, including the Pediatric Quality of Life Inventory, assessing child and family functioning; providers reported diagnostic impressions. A latent profile analysis found five distinct groups: Low Risk, School Problems, Only Social Emotional Problems, and two Physical/Social Emotional Problems. The groups differed on clinical characteristics and family functioning. These findings have implications for more efficient and effective evaluations in service delivery systems serving complex patients.

Keywords: Autism; Autism spectrum disorder; Clinical services; Quality of life.

MeSH terms

  • Adolescent
  • Autism Spectrum Disorder / psychology*
  • Child
  • Child, Preschool
  • Disabled Children / psychology*
  • Emotions
  • Female
  • Humans
  • Latent Class Analysis
  • Male
  • Mental Health Services*
  • Parents / psychology
  • Quality of Life*
  • Referral and Consultation
  • Students / psychology*
  • Surveys and Questionnaires