"Like He's a Kid": Relationality, Family Caregiving, and Alzheimer's Disease

Med Anthropol. 2020 Jan;39(1):29-40. doi: 10.1080/01459740.2019.1667344. Epub 2019 Dec 6.

Abstract

Spousal caregivers draw upon understandings of shifting relationality to maintain a familial understanding of their spouse with Alzheimer's disease. Working through what it means to think of an adult with Alzheimer's disease "like a child," I trace how spouses negotiate their shifting relationships across the course of Alzheimer's. While regarding adults as childlike can be perceived as dehumanizing infantilization, for families living with Alzheimer's disease, conceiving of one's spouse as like a child can actually enable processes of continued care, sustained recognition, and love to uphold personhood in the midst of often radical change.

Keywords: Alzheimer’s disease; United States; caregiving; recognition; relationality.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Alzheimer Disease* / ethnology
  • Alzheimer Disease* / therapy
  • Caregivers / psychology*
  • Family* / ethnology
  • Family* / psychology
  • Female
  • Humans
  • Male
  • Spouses
  • United States / ethnology