An empowerment program for family caregivers of people with dementia

Public Health Nurs. 2020 Mar;37(2):222-233. doi: 10.1111/phn.12690. Epub 2019 Dec 2.

Abstract

Objectives: Family caregivers of people with dementia (PWD) often feel powerless and experience decreased well-being. Our aim was to develop an intervention program based on the caregiver empowerment model (CEM) and apply it with the Korean caregivers to evaluate its effects.

Design and sample: The study population comprised 115 family caregivers (experimental group, n = 35, control group 1, n = 40, control group 2, n = 40).

Methods: Using an experimental design with two control groups. The experimental group received a 12-week program including intensive counseling, education, and telephone calls. The control group 1 (CG1) received usual service. The control group 2 (CG2) was provided with a handbook during the first week. A mixed-effects model was used to clarify longitudinal changes in participants' outcomes.

Results: The experimental group showed significantly increased caregiving appraisal (effect size in CG1 = -7.25; CG2 = -5.63), caregiving attitude (CG1 = -21.47; CG2 = -17.79), self-efficacy (CG1 = -12.42; CG2 = -10.12), and well-being (CG1 = -4.33; CG2 = -2.35) after the program.

Conclusions: The empowerment program can be used to promote family caregivers' positive adaptation and to help caregivers who care for PWD to effectively cope with their problems.

Keywords: dementia; empowerment; family caregivers; self-efficacy; well-being.

Publication types

  • Randomized Controlled Trial
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological
  • Aged
  • Caregivers / psychology*
  • Caregivers / statistics & numerical data
  • Dementia / therapy*
  • Empowerment*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Program Evaluation
  • Self Efficacy