Transition to Adult Care

John Berens; Cynthia Wozow; Cynthia Peacock

doi:10.1016/j.pmr.2019.09.004

Transition to Adult Care

Phys Med Rehabil Clin N Am. 2020 Feb;31(1):159-170. doi: 10.1016/j.pmr.2019.09.004. Epub 2019 Nov 6.

Authors

John Berens¹, Cynthia Wozow², Cynthia Peacock³

Affiliations

¹ Department of Internal Medicine, Section of Transition Medicine, Baylor College of Medicine, Transition Medicine Clinic, 7200 Cambridge Street, Suite 8A, Houston, TX 77030, USA. Electronic address: john.berens@bcm.edu.
² Department of Physical Medicine and Rehabilitation, Baylor College of Medicine, Texas Children's Hospital, 6701 Fannin Street, Wallace Tower 1280, Houston, TX 77030, USA.
³ Department of Internal Medicine, Section of Transition Medicine, Baylor College of Medicine, Transition Medicine Clinic, 7200 Cambridge Street, Suite 8A, Houston, TX 77030, USA.

PMID: 31760989
DOI: 10.1016/j.pmr.2019.09.004

Abstract

The transition from pediatric-based to adult-based health care is often difficult, especially for individuals with chronic illness or developmental disabilities, such as cerebral palsy. This article describes the current state of health care transition, focusing on some of the elements that contribute to the complexity of this challenging life period, including: changes to health care insurance, medicolegal considerations and options for supported decision making, discussions about vocations and related barriers and resources, and important psychosocial issues faced by many patients with cerebral palsy. Evidence-based processes and practices are described that can help facilitate health care transition planning and improve outcomes.

Keywords: Adolescence; Cerebral palsy; Chronic childhood illness; Developmental disabilities; Emerging adults; Health care transition; Intellectual disabilities; Transition to adult care.

Publication types

Review

MeSH terms

Adult
Cerebral Palsy / therapy*
Decision Making*
Humans
Intellectual Disability / therapy*
Medical Assistance
Transition to Adult Care*