Patient-reported outcomes in the Translational Breast Cancer Research Consortium

Cancer. 2020 Mar 1;126(5):922-930. doi: 10.1002/cncr.32615. Epub 2019 Nov 19.

Abstract

Members of the Translational Breast Cancer Research Consortium conducted an expert-driven literature review to identify a list of domains and to evaluate potential measures of these domains for inclusion in a list of preferred measures. Measures were included if they were easily available, free of charge, and had acceptable psychometrics based on published peer-reviewed analyses. A total of 22 domains and 52 measures were identified during the selection process. Taken together, these measures form a reliable and validated list of measurement tools that are easily available and used in multiple cancer trials to assess patient-reported outcomes in relevant patients.

Keywords: breast cancer consortium; breast cancer treatment; clinical trials; patient-reported outcomes; translational clinical judgements.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Breast Neoplasms / therapy*
  • Clinical Trials as Topic / statistics & numerical data*
  • Female
  • Humans
  • Patient Reported Outcome Measures*
  • Quality of Life*
  • Surveys and Questionnaires / standards*