Palliative Care Models in Long-Term Care: A Scoping Review

Sharon Kaasalainen; Tamara Sussman; Lynn McCleary; Genevieve Thompson; Paulette V Hunter; Abigail Wickson-Griffiths; Rose Cook; Vanina Dal Bello-Haas; Lorraine Venturato; Alexandra Papaioannou; John You; Deborah Parker

doi:10.12927/cjnl.2019.25975

Palliative Care Models in Long-Term Care: A Scoping Review

Nurs Leadersh (Tor Ont). 2019 Sep;32(3):8-26. doi: 10.12927/cjnl.2019.25975.

Authors

Affiliations

¹ Professor, School of Nursing, McMaster University, Hamilton, ON.
² Associate Professor, Faculty of Arts, School of Social Work, McGill University, Montreal, QC.
³ Professor, Faculty of Applied Health Sciences, Brock University, St. Catharines, ON.
⁴ Associate Professor, College of Nursing, Max Rady Faculty of Health Sciences, University of Manitoba, Winnipeg, MB.
⁵ Associate Professor, St. Thomas More College, University of Saskatchewan, Saskatoon, SK.
⁶ Assistant Professor, Faculty of Nursing, University of Regina, Regina, SK.
⁷ Director, Program Administration - Clinical, Toronto Central Local, Health Integration Network, Toronto, ON.
⁸ Professor, School of Rehabilitation Science, McMaster University, Hamilton, ON.
⁹ Associate Professor, Chair in Gerontology, Faculty of Nursing, University of Calgary, Calgary, AB.
¹⁰ Professor, Department of Medicine, Division of Geriatrics, GERAS Centre, Hamilton Health Sciences, Hamilton, ON.
¹¹ Associate Professor, Department of Medicine, McMaster University, Hamilton, ON.
¹² Professor of Nursing Aged Care (Dementia), Faculty of Health, University of Technology Sydney Ultimo, NSW.

PMID: 31714204
DOI: 10.12927/cjnl.2019.25975

Abstract

Objective: The goal of this scoping review was to identify existing palliative models in long-term care (LTC) homes and differentiate between the key components of each in terms of training/capacity-building strategies; resident, family and staff support; and advance care planning (ACP) and goals-of-care discussions.

Methods: We conducted a scoping review based on established methods to summarize the international literature on palliative models and programs for LTC. We analyzed the data using tabular summaries and content analysis.

Results: We extracted data from 46 articles related to palliative programs, training/capacity building, family support, ACP and goals of care. Study results highlighted that three key components are needed in a palliative program in LTC: (1) training and capacity building; (2) support for residents, family and staff; and (3) ACP, goals-of-care discussion and informed consent.

Conclusion: This scoping review provided important information about key components to be included in a palliative program in LTC. Future work is needed to develop a model that suits the unique characteristics in the Canadian context.

Publication types

Review

MeSH terms

Guidelines as Topic
Humans
Nursing Homes / organization & administration
Palliative Care / methods*
Palliative Care / trends
Terminal Care / methods*
Terminal Care / trends