The role of hope for health professionals in rehabilitation: A qualitative study on unfavorable prognosis communication

PLoS One. 2019 Oct 29;14(10):e0224394. doi: 10.1371/journal.pone.0224394. eCollection 2019.

Abstract

Background: The communication of prognosis represents an ethical and clinical challenge in medical practice due to the inherent uncertain character of prognostic projections. The literature has stressed that the mode of communicating prognoses has an impact on patients' hope, which is considered to play a major role in adapting to illness and disability. In light of this, this study aims to explore health professionals' (HPs) perceptions of the role of hope in rehabilitation and to examine if and how they use strategies to maintain hope when discussing prognostic information with patients.

Methods: Eleven qualitative semi-structured interviews with a purposive sample of HPs were conducted at two rehabilitation clinics in the Canton of Ticino, Switzerland. The interviews were analyzed using thematic analysis.

Results: The HPs perceive hope in rehabilitation as a double-edged sword. Three main strategies were identified to maintain hope while avoiding false hope: 1) giving space for self-evaluation; 2) tailoring the communication of prognostic information; and 3) supporting the patient in dealing with the prognosis. These strategies are particularly suitable when HPs consider that patients might not be ready to accept the prognosis, due to their expectations for recovery.

Conclusions: The strategies identified here support a person-centered approach to the communication of prognosis and are in line with existing protocols for the communication of unfavorable medical information. The findings emphasize the need for strengthening communication and inter-professional collaboration skills of rehabilitation HPs.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Attitude of Health Personnel
  • Communication
  • Female
  • Health Personnel / psychology*
  • Hope / ethics*
  • Humans
  • Interview, Psychological / methods
  • Male
  • Middle Aged
  • Physician-Patient Relations / ethics
  • Prognosis
  • Qualitative Research
  • Rehabilitation / psychology*
  • Self-Assessment
  • Switzerland

Grants and funding

This work received a grant from the Scientific Research Advisory Board of the Ente Ospedaliero cantonale (ABREOC) and perceived a salary from the Sasso Corbaro Medical Humanities Foundation for this study to NG. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript.