Improving the disease awareness: how a communication campaign brings hidradenitis suppurativa to the light

J Eur Acad Dermatol Venereol. 2019 Oct:33 Suppl 6:7-9. doi: 10.1111/jdv.15828.

Abstract

Background: Hidradenitis suppurativa is an inflammatory skin disease that presents a recurrence of painful and suppurating lesions in the apocrine gland-bearing regions, with a strong impact on the patients' life quality. Despite its peculiar presentation, early forms are often underestimated by patients and this would inevitably result in late diagnosis and delayed therapy.

Objectives: Improved communication around the disease could facilitate self-diagnosis and a quicker response from healthcare practitioners, especially in this moment when we dispose of effective treatment against this disease.

Methods: A HS awareness campaign was conducted for 2 years with the help of a media agency and a patients' association.

Results: Results confirm that a better communication has a strong impact on the disease awareness.

Conclusions: This paper demonstrates that the more this disease awareness is carried on, the more quick, effective and efficient the patient's management could be.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Child
  • Communication*
  • Cysts / diagnosis
  • Diagnostic Self Evaluation
  • Female
  • Health Education / methods*
  • Health Knowledge, Attitudes, Practice
  • Hidradenitis Suppurativa / diagnosis*
  • Humans
  • Male
  • Mass Media
  • Middle Aged
  • Social Media
  • Young Adult