Effects of maintaining web-based diaries by caregivers on adherence to care regimens in preschoolers with asthma

J Spec Pediatr Nurs. 2019 Oct;24(4):e12263. doi: 10.1111/jspn.12263. Epub 2019 Jul 23.

Abstract

Background: The objective of this pilot study was to assess the effects of maintaining web-based diaries by the caregivers of preschoolers with asthma on the adherence to asthma care regimens, the recognition of asthma symptoms, and their perceived levels of parenting stress, quality of life, and family functioning.

Design and methods: The caregivers of preschoolers with asthma completed a 4-week web-based diary and received weekly emails that depicted their children's asthma symptoms. We compared asthma symptoms from before and after the intervention. We analyzed demographic data, such as the caregivers' age and education, and assessment scores from the Japanese Pediatric Asthma Control program (JPAC), Adherence with Asthma Management for Caregivers of Preschoolers (AAMCP), General Functioning subscale of the Family Assessment Device (GF-FAD), Parenting Stress Index Short Form (PSI-SF), and Quality of Life assessment scale for Caregivers of Asthmatic Children 24 (QOLCA-24).

Results: A total of 45 participants were included in the analyses. The mean scores depicting asthma control were significantly improved postintervention (pre: 12.29 ± 2.65; post: 13.02 ± 2.01; t = -2.15, p = .037). Mean AAMCP scores postintervention (52.13 ± 6.25) were significantly greater than before (49.78 ± 7.20; t = -3.07; p = .004).

Practice implications: Adherence to asthma care and the recognition of asthma symptoms improved following the use of a web-based diary, making it a potential cost-effective intervention for asthma patients and their families.

Keywords: asthma; caregivers; patient web portal; preschool; therapeutic adherence.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Asthma / nursing*
  • Attitude to Health*
  • Caregivers / psychology*
  • Child
  • Child, Preschool
  • Female
  • Guideline Adherence / statistics & numerical data*
  • Humans
  • Infant
  • Internet*
  • Japan
  • Male
  • Medical Records / statistics & numerical data*
  • Middle Aged
  • Parents / psychology*
  • Pilot Projects
  • Surveys and Questionnaires
  • Young Adult