Overvaluing individual consent ignores risks to tribal participants

Nat Rev Genet. 2019 Sep;20(9):497-498. doi: 10.1038/s41576-019-0161-z. Epub 2019 Jul 15.

Abstract

Genomic studies often rely on individual-based consent approaches for tribal members residing outside of their communities. This consent model fails to acknowledge the risks to small groups such as tribes, which can implicate the community as a whole.

MeSH terms

  • Genomics / standards*
  • Humans
  • Informed Consent / standards*