Unmet needs of people with Parkinson's disease: A cross-sectional study

J Adv Nurs. 2019 Dec;75(12):3504-3514. doi: 10.1111/jan.14147. Epub 2019 Oct 9.

Abstract

Aims: To identify the type and extent of unmet needs in people with Parkinson's disease and to examine the impact of health locus of control and family support on these needs.

Design: A cross-sectional study.

Methods: This study was conducted from October 2015 - February 2016 in Korea. Data were collected through questionnaires focusing on unmet needs, health locus of control, family support and clinical features.

Results: Therapeutic needs represented the highest percentage of unmet needs in people with Parkinson's disease (85.05%), followed by social/spiritual/emotional needs (82.72%). Physical needs were the lowest reported score (75.01%). Unmet needs were more frequent in those with more severe non-motor symptoms. Also, higher family support, internal locus of control and doctor locus of control were correlated with more unmet needs.

Conclusion: Understanding factors that determine the type and degree of unmet needs in people with PD is important to provide appropriate nursing care. The findings of this study can be used for providing nursing interventions reflecting unmet needs and reducing their unmet needs to improve the overall well-being of people with PD.

Impact: This study addressed unmet needs unmet needs specific to Parkinson's disease with respect to their nursing needs. Therapeutic needs were the highest unmet needs in people with PD, followed by social/spiritual/emotional needs, need for certainty and physical needs. The findings may be useful for nurses to identify the unmet needs of people with PD which need to be addressed. By reflecting on unmet needs, nurses can give personally tailored nursing care.

目的: 确定帕金森病患者未满足需求的类型和程度并研究健康控制点和家庭支持对这些需求的影响。 设计: 横向研究。 方法: 这项研究于2015年10月至2016年2月在韩国进行。资料收集方式为问卷调查,问卷内容包括未满足的需求、健康控制点、家庭支持和临床特征。 结果: 治疗需求是帕金森病患者未被满足需求的最高比例(85.05%),其次是社会/精神/情感需求(82.72%)。身体需求是最低的报告得分(75.01%)。未满足的需求在非运动症状较严重的患者中更为常见。家庭支持程度、内控倾向、医生倾向与未满足需求呈正相关。 结论: 了解决定PD患者未满足需求类型和程度的因素对提供适当的护理很重要。本研究的结果可用于提供反映未满足需求的护理干预措施,减少未满足需求,以改善PD患者的整体健康状况。 影响: 本研究针对帕金森病患者的护理需求提出了未满足的需求。治疗性需求是PD患者未被满足的最高需求,其次是社会/精神/情感需求、确定性需求和身体需求。这些结果可能对护士识别PD患者未满足的需求是有用的,这些需求需要被处理。通过反思未满足的需求,护士可以提供个性化的护理服务。.

Keywords: Parkinson's disease; locus of control; need; nursing; support.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Cross-Sectional Studies
  • Emotions
  • Family
  • Female
  • Health Services Needs and Demand
  • Humans
  • Internal-External Control
  • Male
  • Middle Aged
  • Needs Assessment*
  • Parkinson Disease / nursing
  • Parkinson Disease / psychology*
  • Parkinson Disease / therapy*
  • Republic of Korea
  • Social Support
  • Spirituality
  • Surveys and Questionnaires