Paying to Normalize Life: Monetary and Psychosocial Costs of Realizing a Normal Life in the Context of Free Antiretroviral Therapy Services in Uganda

J Int Assoc Provid AIDS Care. 2019 Jan-Dec:18:2325958219859654. doi: 10.1177/2325958219859654.

Abstract

Antiretroviral therapy (ART) is considered the treatment that enables people living with HIV (PLHIV) to lead a "normal life". In spite of the availability of free treatment, patients in resource-poor settings may continue to incur additional costs to realize a normal and full life. This article describes the monetary expenses and psychosocial distress people on free ART bear to live normally. We conducted in-depth interviews with 50 PLHIV on ART. We found that the demands of treatment, poverty, stigma, and health-system constraints interplay to necessitate that PLHIV bear continuous monetary and psychosocial costs to realize local values that define normal life. In the context, access to free medicines is not sufficient to enable PLHIV in resource-poor settings to normalize life. Policy makers and providers should consider proactively complementing free ART with mechanisms that empower PLHIV economically, enhance their problem-solving capacities, and provide an enabling environment if the objective of normalizing life is to be achieved.

Keywords: Uganda; antiretroviral therapy; money; normal life; people living with HIV; psychosocial costs.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Anti-Retroviral Agents / economics*
  • Anti-Retroviral Agents / therapeutic use*
  • Female
  • HIV Infections / economics*
  • HIV Infections / psychology*
  • Health Resources / economics
  • Humans
  • Life Style*
  • Male
  • Middle Aged
  • Social Stigma
  • Stress, Psychological / economics*
  • Uganda
  • Young Adult

Substances

  • Anti-Retroviral Agents