Ethical Considerations for Movement Mapping to Identify Disease Transmission Hotspots

Emerg Infect Dis. 2019 Jul;25(7):e181421. doi: 10.3201/eid2507.181421.

Abstract

Traditional public health methods for detecting infectious disease transmission, such as contact tracing and molecular epidemiology, are time-consuming and costly. Information and communication technologies, such as global positioning systems, smartphones, and mobile phones, offer opportunities for novel approaches to identifying transmission hotspots. However, mapping the movements of potentially infected persons comes with ethical challenges. During an interdisciplinary meeting of researchers, ethicists, data security specialists, information and communication technology experts, epidemiologists, microbiologists, and others, we arrived at suggestions to mitigate the ethical concerns of movement mapping. These suggestions include a template Data Protection Impact Assessment that follows European Union General Data Protection Regulations.

Keywords: GPS; ethics; infectious diseases; mobile phones; movement mapping; smartphones; transmission hotspots.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Cell Phone
  • Communicable Diseases / epidemiology*
  • Communicable Diseases / transmission*
  • Cost-Benefit Analysis
  • Disease Outbreaks
  • Ethics, Medical*
  • Geographic Information Systems
  • Humans
  • Informed Consent
  • Population Surveillance
  • Privacy
  • Public Health Surveillance* / methods
  • Risk Assessment
  • Sentinel Surveillance*