Objective: To investigate the current status of uncertainty in illness and caregiving burden in family members of patients with chronic wounds, and to analyze the relationship between them. Methods: A total of 180 patients with chronic wounds admitted to the Department of Emergency of our hospital from October 2017 to March 2018, conforming to the study criteria, were selected by adopting the convenience sampling method. Then one family member who took care of the patients for the longest time and conformed to the study criteria were included in this cross-sectional survey. General Information Questionnaire made by the authors was conducted to investigate the demographic data and wounds of patients, and demographic data of family members. Chinese version of Parent Perception of Uncertainty Scale-Family Member (PPUS-FM) and Caregiver Burden Inventory (CBI) were used to investigate the uncertainty in illness and caregiving burden. Data were processed with multiple linear regression analysis and partial correlation analysis. Results: The effective recovery rate of questionnaire was 91.7% (165/180). (1) The ages of patients were (71±17) years. Among them, there were 89 males and 76 females. The course of chronic wounds was 0.5 to 120.0 months. The wounds were mainly primary occurrence (86.1%, 142 patients), and the main type of wound was pressure ulcer (43.6%, 72 patients). Fifty-seven patients (34.5%) had wound infection. The ages of family members were (56±13) years, and 61.8% (102 people) of them were female. Their daily time of taking care of patients was (10±8) h. (2) The total scores of PPUS-FM of family members were 33 to 125 (88±17) points, mainly in medium level, in which the item score of unpredictability dimension was the highest. (3) The total scores of CBI of family members were 7 to 79 (43±14) points, in which the item score of time-dependence burden dimension was the highest. (4) Uncertainty in PPUS-FM could independently influence 10% of the total variation of caregiving burden in family members of patients (t=3.18, P<0.01). (5) The total scores of PPUS-FM of family members were in significantly positive correlation with the total scores of CBI and scores of physical burden, emotional burden, and social burden, respectively (r=0.33, 0.32, 0.25, 0.36, P<0.05 or P<0.01), while there was no obvious correlation between total scores of PPUS-FM of family members and time-dependence burden/developmental burden (r=0.14, 0.16, P>0.05). Conclusion: There is positive correlation between uncertainty in illness and caregiving burden.
目的： 调查慢性伤口患者家属的疾病不确定感和照顾负担现状，并探讨两者的相关性。 方法： 采用方便抽样法选择2017年10月—2018年3月在笔者单位急诊科就诊的180例符合入选标准的慢性伤口患者，再每例患者选择1名符合入选标准的照顾患者时间最长的家属180名，纳入此横断面调查。采用自制的一般资料问卷调查患者的人口学资料、伤口相关信息及患者家属的人口学资料，采用中文版疾病不确定感家属量表(PPUS－FM)和中文版照顾者负担量表(CBI)调查患者家属的疾病不确定感和照顾负担。对数据行多元线性回归分析和偏相关分析。 结果： 本次调查问卷有效回收率为91.7%(165/180)。(1)本组患者的年龄为(71±17)岁，其中男89例、女76例，慢性伤口病程为0.5～120.0个月，以初发伤口为主(142例，占86.1%)，主要伤口类型为压疮(72例，占43.6%)，57例(34.5%)患者有伤口感染。家属年龄为(56±13)岁，以女性为主(102名，占61.8%)，每日照顾患者的时间为(10±8)h。(2)本组家属PPUS－FM总得分为33～125(88±17)分，以中等水平为主，以不可预测性的条目得分最高。(3)本组家属CBI总得分为7～79(43±14)分，以时间依赖性负担的条目得分最高。(4)PPUS－FM中的不明确性能独立影响患者家属照顾负担总变异的10%(t＝3.18，P<0.01)。(5)本组家属PPUS－FM总分与CBI总分及身体性负担维度、情感性负担维度、社交性负担维度得分呈明显正相关(r＝0.33、0.32、0.25、0.36，P<0.05或P<0.01)，与时间依赖性负担维度及发展受限性负担维度得分无明显相关性(r＝0.14、0.16，P>0.05)。 结论： 慢性伤口患者家属疾病不确定感与照顾负担呈正相关。.
Keywords: Caregivers; Caregiving burden; Questionnaires; Uncertainty in illness; Wound healing.