Undoing the unspeakable: researching racism in Swedish healthcare using a participatory process to build dialogue

Health Res Policy Syst. 2019 Apr 23;17(1):43. doi: 10.1186/s12961-019-0443-0.

Abstract

Background: Racism is difficult to discuss in the context of Swedish healthcare for various cultural and administrative reasons. Herein, we interpret the fragmentary nature of the evidence of racialising processes and the difficulty of reporting racist discrimination in terms of structural violence.

Methods: In response to the unspeakable nature of racism in Swedish healthcare, we propose a phased participatory process to build a common vocabulary and grammar through a consultative framework involving healthcare providers and service users as well as policy-makers. These stakeholders will be involved in an educational intervention to facilitate discussion around and avoidance of racism in service provision.

Discussion: Both the participatory process and outcomes of the process, e.g. educational interventions, will contribute to the social and political conversation about racism in healthcare settings. Creating new ways of discussing sensitive topics allows ameliorative actions to be taken, benefitting healthcare providers and users. The urgency of the project is underlined.

Keywords: Sweden; healthcare; participatory methods; racism.

MeSH terms

  • Administrative Personnel*
  • Communication*
  • Culture
  • Delivery of Health Care*
  • Education, Continuing
  • Group Processes
  • Health Equity
  • Health Personnel* / education
  • Humans
  • Professional-Patient Relations*
  • Quality of Health Care
  • Racism*
  • Referral and Consultation
  • Research Design
  • Sweden