Wearing the Mask of Wellness: The Experience of Young Women Living With Advanced Breast Cancer

Oncol Nurs Forum. 2019 May 1;46(3):329-337. doi: 10.1188/19.ONF.329-337.

Abstract

Purpose: To describe and interpret the lived experiences of young women with advanced breast cancer.

Participants & setting: 12 women, aged 25-39 years with advanced breast cancer, were recruited from private Facebook groups for women with breast cancer.

Methodologic approach: Van Manen's hermeneutic phenomenologic method was used. Data were collected through one or more semi-structured interviews over a six-month period. Analysis was conducted using NVivo, version 11.

Findings: The participants' multidimensional experiences were described by the overarching theme of wearing the mask of wellness in the presence of life-threatening illness.

Implications for nursing: This study provides insight into the experiences of young women living with advanced breast cancer. Because these women may not appear ill to the general population, their needs and struggles are not well understood. The results of this study can be a baseline for additional research and clinical interventions.

Keywords: advanced cancer; breast cancer; coping; qualitative research; quality of life; unmet needs.

MeSH terms

  • Adaptation, Psychological
  • Adult
  • Attitude to Health
  • Breast Neoplasms / pathology
  • Breast Neoplasms / psychology*
  • Deception*
  • Female
  • Femininity
  • Follow-Up Studies
  • Humans
  • Interpersonal Relations
  • Qualitative Research
  • Self Concept
  • Social Perception
  • Social Support
  • Socioeconomic Factors