How to involve children and young people in what is, after all, their research

Arch Dis Child. 2019 May;104(5):494-500. doi: 10.1136/archdischild-2018-315118.

Authors

Jenny Preston¹, Simon R Stones², Hugh Davies³, Jennifer Preston, Bob Phillips^{4

5}

Affiliations

¹ NIHR Alder Hey Clinical Research Facility, Alder Hey Children's NHS Foundation Trust, Liverpool, UK.
² School of Healthcare, University of Leeds, Leeds, UK.
³ Health Research Authority, London, UK.
⁴ Department of Paediatric Oncology, Leeds Children's Hospital, Leeds, UK.
⁵ Centre for Reviews and Dissemination, University of York, York, UK.

PMID: 31000534
DOI: 10.1136/archdischild-2018-315118

Abstract

Third in a series of four articles addressing ethical approaches and issues in undertaking clinical research with children and young people.

Keywords: children’s rights; ethics; health services research.

© Author(s) (or their employer(s)) 2019. No commercial re-use. See rights and permissions. Published by BMJ.

Publication types

Research Support, Non-U.S. Gov't
Review

MeSH terms

Adolescent
Biomedical Research / ethics
Biomedical Research / organization & administration*
Child
Child Advocacy*
Ethics Committees, Research / organization & administration
Ethics, Research
Humans
Moral Obligations
Patient Participation / methods*
Pediatrics / ethics*
Research Design

Grants and funding