Parental Perceptions of a Comprehensive Diagnostic Evaluation for Toddlers at Risk for Autism Spectrum Disorder

J Autism Dev Disord. 2019 May;49(5):1763-1777. doi: 10.1007/s10803-018-3851-z.

Abstract

Parent satisfaction with neurodevelopmental evaluations may influence the pursuit of intervention. Parent satisfaction with a neurodevelopmental evaluation for toddlers at risk for autism (n = 257; 128 with autism) was examined using the Post-Evaluation Satisfaction Questionnaire, which collected quantitative and qualitative information. Fewer ethnic/racial minority than non-minority parents returned the questionnaire. Factor analysis indicated a one-factor model, Total score, which did not differ significantly by diagnosis, autism severity, child's cognitive or adaptive delay, family race/ethnicity, maternal education, family annual income, or parental stress. Examination of 24 individual items showed a race/ethnicity difference for only one item; minority parents scored the evaluation as meeting their needs less. Qualitative data stressed the importance of fully explaining diagnoses/recommendations and providing direct and clear feedback.

Keywords: Autism spectrum disorder; Diagnostic evaluation; Health services research; Parental satisfaction.

MeSH terms

  • Attitude*
  • Autism Spectrum Disorder / diagnosis
  • Autism Spectrum Disorder / epidemiology
  • Autism Spectrum Disorder / psychology*
  • Child, Preschool
  • Female
  • Humans
  • Income
  • Male
  • Minority Groups
  • Neuropsychological Tests
  • Parents / psychology*
  • Perception*
  • Personal Satisfaction*
  • Truth Disclosure