People With Advanced Cancer: The Process of Living Well With Awareness of Dying

Qual Health Res. 2020 Jul;30(8):1143-1155. doi: 10.1177/1049732318816298. Epub 2018 Dec 12.

Abstract

Literature suggests that it is possible to live well with advanced cancer but little is known about the process. In this article, we present a secondary analysis of experiences of living with advanced cancer (n = 22) that refines the theory of "Living Well with Chronic Illness" for a different context and population. The refined theory explains the experience of living well with advanced cancer illuminating a five-phase iterative process: struggling, accepting, living with advanced cancer, sharing the illness experience, and reconstructing life. These five phases revolve around the core concept of Awareness of Dying, which varied from awareness of the possibility of dying, to accepting the possibility of dying, to acceptance that "I am dying." Awareness of Dying led to a focus on living well with advanced cancer and movement towards living a life rather than living an illness.

Keywords: advanced cancer; constant comparative analysis; dying; end of life; europe; palliative; qualitative; secondary analysis; theory.

MeSH terms

  • Chronic Disease
  • Humans
  • Neoplasms*