Patient-led decision making: Measuring autonomy and respect in Canadian maternity care

Patient Educ Couns. 2019 Mar;102(3):586-594. doi: 10.1016/j.pec.2018.10.023. Epub 2018 Nov 2.

Abstract

Objective: The Changing Childbirth in British Columbia study explored women's preferences and experiences of maternity care, including women's role in decision-making.

Methods: Following content validation by community members, we administered a cross-sectional online survey exploring novel topics, including drivers for interventions, and experiences of autonomy, respect, or mistreatment during maternity care. Using the Mothers Autonomy in Decision-Making (MADM) scale as an outcome measure in a mixed-effects analysis, we examined differential experiences by socio-demographic and prenatal risk profile, type of care provider, interventions received, and nature of communication with care providers.

Results: A geographically representative sample of Canadian women (n = 2051) reported on 3400 pregnancies. Most women (95.2%) preferred to be the lead decision-maker during care. Patients of physicians had significantly lower autonomy (MADM) scores than midwifery clients as did women who felt pressured to accept interventions. Women who had a difference in opinion with their provider, and those who felt their provider seemed rushed reported the lowest MADM scores.

Conclusion: Women's autonomy is significantly altered by model of maternity care, the nature of interactions with care providers, and women's ability for self-determination.

Practice implications: If health professionals acquire skills in person-centred decision-making experience of autonomy among pregnant women may improve.

Keywords: Autonomy; Childbirth; Decision-making; Participatory research; Patient-oriented; Person-centered; Pregnancy; Quality measure; Respectful maternity care.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Canada
  • Community-Based Participatory Research
  • Cross-Sectional Studies
  • Decision Making*
  • Female
  • Humans
  • Maternal Health Services / organization & administration*
  • Midwifery
  • Mothers
  • Patient-Centered Care*
  • Personal Autonomy*
  • Physicians
  • Pregnancy
  • Pregnant Women
  • Professional-Patient Relations*
  • Quality of Health Care
  • Respect*
  • Socioeconomic Factors
  • Surveys and Questionnaires