Bearing Witness: Exploring the End-of-Life Needs of Homeless Persons and Barriers to Appropriate Care

Omega (Westport). 2020 Nov;82(1):63-91. doi: 10.1177/0030222818801150. Epub 2018 Oct 2.

Abstract

Traditional models of palliative care are largely inaccessible to homeless persons, and their preferences regarding end-of-life care are poorly understood. The purpose of the present scoping review is to summarize the burgeoning gray and academic literature on end-of-life care for homeless persons. Five medical databases, seven social science databases, and four gray literature databases were searched, resulting in 57 relevant titles. Six themes emerged: (a) Characteristics of homeless persons who require end-of-life care; (b) preferences and concerns of homeless persons approaching the end of life; (c) the role of spirituality for homeless persons at the end of life; (d) barriers to care at the patient, provider, and institutional or structural levels; (e) inclusive models of palliative care; and (f) implications for policy and practice. Practitioners and homeless persons must negotiate many obstacles in the provision and receipt of palliative care. However, there is tremendous potential and opportunity to improve the quality of life at the end of life for this vulnerable population.

Keywords: dying; dying in place; end-of-life care; homelessness; palliative care; patient-centered care.

Publication types

  • Review

MeSH terms

  • Death*
  • Female
  • Health Services Accessibility*
  • Humans
  • Ill-Housed Persons*
  • Male