The evolving role of patient advocates in rare cancers: opportunities and challenges

Expert Rev Pharmacoecon Outcomes Res. 2019 Feb;19(1):1-3. doi: 10.1080/14737167.2019.1526083. Epub 2018 Sep 27.

Authors

Ornella Gonzato¹, Alessandro Gronchi²

Affiliations

¹ a Associazione Paola for Muskulo-Skeletal Tumors - Onlus , Udine , Italy.
² b Department of Surgery , Fondazione IRCCS Istituto Nazionale dei Tumori , Milan , Italy.

PMID: 30227750
DOI: 10.1080/14737167.2019.1526083

No abstract available

Keywords: Rare cancers; orphan drugs; patients advocacy group; reference centers; sarcoma.

Publication types

Editorial

MeSH terms

Health Services Needs and Demand
Humans
Neoplasms / therapy*
Orphan Drug Production
Patient Advocacy / trends*
Quality of Health Care
Rare Diseases / therapy*