Participatory Technology Development to Enhance Community Resilience

Ethn Dis. 2018 Sep 6;28(Suppl 2):493-502. doi: 10.18865/ed.28.S2.493. eCollection 2018.

Abstract

Objective: To assess the feasibility of a novel, partnered technology development process to co-create mobile health applications (apps) addressing community health priorities, using psychoeducation of cognitive behavioral therapy (CBT) principles for enhancing resilience as an example.

Design: Stakeholder engagement, workgroups, pilot feasibility study using mixed methods during October 2013 through January 2016 over three phases: 1) defining the vision of the project and increasing technical capacity, 2) co-development and pilot testing of the app, and 3) planning for sustainability.

Setting: An academic-community partnership in South Los Angeles, California.

Participants: Eight stakeholders; 30 pilot participants from the community.

Main outcome measures: Qualitative analysis of audio-recordings of the app development process and stakeholder interviews, surveys of stakeholders' perception of the development process, app use data, and feedback from pilot participants.

Results: The participatory technology development process resulted in creation and pilot-testing of a resiliency-focused text messaging app. Of the 1,107 messages sent, 23 out of 30 (77%) app users responded to explore interactive content. Stakeholders reported increased perceived competency in creating mobile apps and that the process fostered a culture of co-leadership. There was also sustained engagement in mobile app development by stakeholders beyond the initial project period.

Conclusions: This is the first study, to our knowledge, to demonstrate the feasibility of participatory technology development, an approach involving direct participation in the development, tailoring and maintenance of a mobile app by a broad set of stakeholders with high representation from racial/ethnic minorities from an under-resourced community. Participatory technology development is a promising approach for creating sustainable, relevant and engaging health technologies across different technological, clinical and community settings.

Keywords: Community Partnered Participatory Research; Disparities; Technology Platform; mHealth.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Cognitive Behavioral Therapy* / methods
  • Cognitive Behavioral Therapy* / trends
  • Community-Based Participatory Research
  • Computer Communication Networks / organization & administration*
  • Feasibility Studies
  • Humans
  • Los Angeles
  • Medically Underserved Area*
  • Minority Health*
  • Mobile Applications / trends
  • Pilot Projects
  • Resilience, Psychological*
  • Stakeholder Participation