Commentary: Community Partner Experiences in CPPR: What Participation in Partnered Research Can Mean to Community and Patient Stakeholders

Ethn Dis. 2018 Sep 6;28(Suppl 2):311-316. doi: 10.18865/ed.28.S2.311. eCollection 2018.

Abstract

Community partners and stakeholders currently engaged in community partnered participatory research (CPPR) can provide personal and professional insight into the processes and outcomes surrounding the CPPR model. This insight may indicate alternative solutions or methods of care delivery that can improve the model and existing interventions. We conducted in-person and phone interviews with five community partners who are currently involved in CPPR. The interviews were audio- and video-recorded, transcribed, and major themes identified. Interviewees recounted their experiences with CPPR and reported various levels of personal (ie, behavioral) and professional growth as a result of their involvement. Interviewees also indicated that CPPR can highlight various aspects of existing interventions (eg, leadership structure, stakeholder representation, methods of provider-to-patient communication, and provision of resources) that may benefit from re-evaluation. Engagement in CPPR may offer various personal and professional benefits for individuals (ie, community partners) involved in stages of development, implementation, and dissemination. The benefits affect these individuals in several ways, from personal growth (eg, emotional maturity, behavioral progress, increased familial resiliency) to professional growth (eg, progression of one's career/role/responsibilities, organizational growth, learned skills). These maturations have secondary effects (eg, increased community resilience, strengthened relationships, community-based mentorships) impacting the communities in which these community partners serve.

Keywords: Academia; Commentary; Community; Mental Health; Narrative; Partnership.

Publication types

  • Editorial
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Community Networks / organization & administration*
  • Community-Based Participatory Research / methods
  • Community-Based Participatory Research / organization & administration
  • Humans
  • Models, Organizational
  • Patient Outcome Assessment*
  • Patient Participation*
  • Stakeholder Participation*