Patients' outcome expectations and their fulfilment in multidisciplinary stroke rehabilitation

Iris F Groeneveld; Paulien H Goossens; Inke van Braak; Stéphanie van der Pas; Jorit J L Meesters; Radha D Rambaran Mishre; Henk J Arwert; Thea P M Vliet Vlieland; SCORE-study group

doi:10.1016/j.rehab.2018.05.1321

Patients' outcome expectations and their fulfilment in multidisciplinary stroke rehabilitation

Ann Phys Rehabil Med. 2019 Jan;62(1):21-27. doi: 10.1016/j.rehab.2018.05.1321. Epub 2018 Jul 24.

Authors

Iris F Groeneveld¹, Paulien H Goossens², Inke van Braak³, Stéphanie van der Pas⁴, Jorit J L Meesters⁵, Radha D Rambaran Mishre⁶, Henk J Arwert⁷, Thea P M Vliet Vlieland⁸; SCORE-study group

Affiliations

¹ Rijnlands Rehabilitation Centre, Wassenaarseweg 501, 2333 AL Leiden, The Netherlands; Sophia Rehabilitation, Vrederustlaan 180, 2543 SW The Hague, The Netherlands; Department of Orthopaedics, Rehabilitation, and Physical Therapy, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands. Electronic address: igroeneveld@zinl.nl.
² Rijnlands Rehabilitation Centre, Wassenaarseweg 501, 2333 AL Leiden, The Netherlands; Department of Orthopaedics, Rehabilitation, and Physical Therapy, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands.
³ Rijnlands Rehabilitation Centre, Wassenaarseweg 501, 2333 AL Leiden, The Netherlands.
⁴ Medical Statistics, Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Albinusdreef 2, 2333 ZA Leiden, The Netherlands; Mathematical Institute, Leiden University, Niels Bohrweg 1, 2333 CA Leiden, The Netherlands.
⁵ Sophia Rehabilitation, Vrederustlaan 180, 2543 SW The Hague, The Netherlands; Department of Orthopaedics, Rehabilitation, and Physical Therapy, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands.
⁶ Sophia Rehabilitation, Vrederustlaan 180, 2543 SW The Hague, The Netherlands; Department of Rehabilitation Medicine, Reinier de Graaf Hospital, Reinier de Graafweg 5, 2625 AD Delft, The Netherlands.
⁷ Sophia Rehabilitation, Vrederustlaan 180, 2543 SW The Hague, The Netherlands; Department of Rehabilitation Medicine, Haaglanden Medical Centre, Lijnbaan 32, 2512 VA Den Haag, The Netherlands.
⁸ Rijnlands Rehabilitation Centre, Wassenaarseweg 501, 2333 AL Leiden, The Netherlands; Sophia Rehabilitation, Vrederustlaan 180, 2543 SW The Hague, The Netherlands; Department of Orthopaedics, Rehabilitation, and Physical Therapy, Leiden University Medical Center, Albinusdreef 2, 2333 ZA Leiden, The Netherlands.

PMID: 30053628
DOI: 10.1016/j.rehab.2018.05.1321

Abstract

Background: Patients' expectations of the outcomes of rehabilitation may influence the outcomes and satisfaction with treatment.

Objectives: For stroke patients in multidisciplinary rehabilitation, we aimed to explore patients' outcome expectations and their fulfilment as well as determinants.

Methods: The Stroke Cohort Outcomes of REhabilitation (SCORE) study included consecutive stroke patients admitted to an inpatient rehabilitation facility after hospitalisation. Outcome expectations were assessed at the start of rehabilitation (admission) by using the three-item Expectancy scale (sum score range 3-27) of the Credibility/Expectancy Questionnaire (CEQ). After rehabilitation, patients answered the same questions formulated in the past tense to assess fulfilment of expectations. Baseline patient characteristics were recorded and health-related quality of life (EQ-5D) was measured at baseline and after rehabilitation. The number of patients with expectations unfulfilled or fulfilled or exceeded was computed by subtracting the admission and discharge CEQ Expectancy scores. Multivariable regression analysis was used to determine the factors associated with outcome expectations and their fulfilment, estimating odds ratios (ORs) and 95% confidence intervals (CIs).

Results: We included 165 patients (96 males [58.2%], mean (SD) age 60.2 years [12.7]) who completed the CEQ Expectancy instrument at admission (median score 21.6, interquartile range [IQR] 17.0-24.0); 79 completed it both at admission (median score 20.6, IQR 16.6-24.4) and follow-up (median score 20.0, IQR 16.4-22.8). For 40 (50.6%) patients, expectations of therapy were fulfilled or exceeded. No patient characteristic at admission was associated with baseline CEQ Expectancy score. Odds of expectation fulfilment were associated with low expectations at admission (OR 0.70, 95% CI 0.60-0.83) and improved EQ-5D score (OR 1.35, 95% CI 1.04-0.75).

Conclusions: In half of the stroke patients in multidisciplinary rehabilitation, expectations were fulfilled or exceeded, most likely in patients with low expectations at admission and with improved health-related quality of life. More research into the role of health professionals regarding the measurement, shaping and management of outcome expectations is needed.

Keywords: Expectations; Rehabilitation; Stroke; “Health-related quality of life”; “Stroke rehabilitation”.

MeSH terms

Disability Evaluation
Female
Humans
Inpatients / psychology*
Male
Middle Aged
Motivation*
Outcome Assessment, Health Care
Patient Acceptance of Health Care / psychology*
Patient Care Team
Quality of Life
Stroke / psychology*
Stroke Rehabilitation / psychology*
Surveys and Questionnaires
Treatment Outcome