[Diagnostic delay in the field of rare diseases from a patient organisation perspective]

MeSH terms

• Critical Pathways / economics
• Critical Pathways / organization & administration
• Delayed Diagnosis* / psychology
• Delayed Diagnosis* / statistics & numerical data
• Female
• Health Resources
• Humans
• Patient Advocacy*
• Perception
• Professional-Patient Relations
• Rare Diseases / diagnosis*
• Self-Help Groups / organization & administration*
• Time Factors
• Whole Genome Sequencing / economics
• Whole Genome Sequencing / methods