The patient perspective: What postural orthostatic tachycardia syndrome patients want physicians to know

Lauren E Stiles; Jaclyn Cinnamon; Irina Balan

doi:10.1016/j.autneu.2018.06.002

The patient perspective: What postural orthostatic tachycardia syndrome patients want physicians to know

Auton Neurosci. 2018 Dec:215:121-125. doi: 10.1016/j.autneu.2018.06.002. Epub 2018 Jun 7.

Authors

Lauren E Stiles¹, Jaclyn Cinnamon², Irina Balan²

Affiliations

¹ Dysautonomia International, East Moriches, New York, USA. Electronic address: lstiles@dysautonomiainternational.org.
² Dysautonomia International, East Moriches, New York, USA.

PMID: 29903594
DOI: 10.1016/j.autneu.2018.06.002

Abstract

Diagnosing and treating postural orthostatic tachycardia syndrome (POTS) can be a frustrating experience for patients and physicians alike. Experienced patient leaders solicited input from the large online POTS community to identify patient suggestions and concerns, with the goal of improving the patient-physician relationship and outcomes in POTS. This review article offers practical tips to improve POTS patient care and links to credible resources for your patients. The authors emphasize the urgent need for improved physician education, a tailored treatment approach, and expanded research efforts.

Publication types

Review

MeSH terms

Health Knowledge, Attitudes, Practice*
Humans
Physician-Patient Relations*
Postural Orthostatic Tachycardia Syndrome* / diagnosis
Postural Orthostatic Tachycardia Syndrome* / psychology
Postural Orthostatic Tachycardia Syndrome* / therapy