The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment

Eden G Robertson; Claire E Wakefield; Richard J Cohn; Tracey O'Brien; David S Ziegler; Joanna E Fardell

doi:10.2196/resprot.9258

The Development of Delta: Using Agile to Develop a Decision Aid for Pediatric Oncology Clinical Trial Enrollment

JMIR Res Protoc. 2018 May 4;7(5):e119. doi: 10.2196/resprot.9258.

Authors

Eden G Robertson^{1

2}, Claire E Wakefield^{1

2}, Richard J Cohn^{1

2

3}, Tracey O'Brien^{2

3}, David S Ziegler^{2

3}, Joanna E Fardell^{1

2}

Affiliations

¹ Behavioural Sciences Unit, Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.
² Discipline of Paediatrics, School of Women's and Children's Health, University of New South Wales, Kensington, Australia.
³ Kids Cancer Centre, Sydney Children's Hospital, Randwick, Australia.

Abstract

Background: The internet is increasingly being used to disseminate health information. Given the complexity of pediatric oncology clinical trials, we developed Delta, a Web-based decision aid to support families deciding whether or not to enroll their child with cancer in a clinical trial.

Objective: This paper details the Agile development process of Delta and user testing results of Delta.

Methods: Development was iterative and involved 5 main stages: a requirements analysis, planning, design, development, and user testing. For user testing, we conducted 13 eye-tracking analyses and think-aloud interviews with health care professionals (n=6) and parents (n=7).

Results: Results suggested that there was minimal rereading of content and a high level of engagement in content. However, there were some navigational problems. Participants reported high acceptability (12/13) and high usability of the website (8/13).

Conclusions: Delta demonstrates the utility for the use of Agile in the development of a Web-based decision aid for health purposes. Our study provides a clear step-by-step guide to develop a Web-based psychosocial tool within the health setting.

Keywords: child; decision making; decision support techniques; neoplasms; patient portals; patients.

©Eden G Robertson, Claire E Wakefield, Richard J Cohn, Tracey O'Brien, David S Ziegler, Joanna E Fardell. Originally published in JMIR Research Protocols (http://www.researchprotocols.org), 04.05.2018.