Construction and Validation of Educational Material for Children with Hydrocephalus and Their Informal Caregivers

World Neurosurg. 2018 Jun:114:381-390. doi: 10.1016/j.wneu.2018.03.082. Epub 2018 Mar 19.

Abstract

Objective: To build and validate journal-type digital and printed educational material for informal caregivers (i.e., the parents who provide care) of children with hydrocephalus.

Methods: This is a methodologic study conducted in the children's neurosurgery outpatient clinic of a university hospital. The content validity index with a concordance of ≥0.78 was used for validation. Content was validated with the participation of 5 nurses and 3 neurosurgeons, and appearance was validated with the participation of 9 informal caregivers of children with hydrocephalus.

Results: A 21-page journal was created to address hydrocephalus and its treatment. The content and semantics of this material were validated with a universal content validity index of 0.90 and 0.98, respectively.

Conclusions: Content and appearance of the educational material for informal caregivers of children with hydrocephalus were successfully validated and considered suitable and user-friendly for health education.

Keywords: Caregivers; Health education; Hydrocephalus; Perioperative nursing; Rehabilitation.

Publication types

  • Validation Study

MeSH terms

  • Caregivers / standards*
  • Child
  • Female
  • Health Personnel / standards
  • Humans
  • Hydrocephalus / surgery*
  • Hydrocephalus / therapy
  • Male
  • Mother-Child Relations
  • Patient Education as Topic / methods
  • Patient Education as Topic / standards*
  • Teaching Materials / standards*
  • Ventriculoperitoneal Shunt / education*