Ethical aspects of data sharing and research participant protections

Michael W Ross; Martin Y Iguchi; Sangeeta Panicker

doi:10.1037/amp0000240

Ethical aspects of data sharing and research participant protections

Am Psychol. 2018 Feb-Mar;73(2):138-145. doi: 10.1037/amp0000240.

Authors

Michael W Ross¹, Martin Y Iguchi², Sangeeta Panicker³

Affiliations

¹ Program in Human Sexuality, Department of Family Medicine and Community Health, University of Minnesota Medical School.
² Drug Policy Research Center, RAND Corporation.
³ Science Directorate, American Psychological Association.

PMID: 29481107
DOI: 10.1037/amp0000240

Abstract

Open access is fast becoming the norm across science. Sharing research data broadly has the potential to accelerate scientific progress, optimize the value of data, and promote scientific integrity. However, data sharing also poses new practical and ethical challenges to the conduct of research with human participants. This article provides an overview of how open access to research data has impacted the core principles of research ethics-respect for persons, beneficence, and justice-and, in turn, how a reinterpretation of these principles translates to procedures for the protection of the rights and wellbeing of human research participants. (PsycINFO Database Record

Publication types

Review

MeSH terms

Confidentiality / ethics*
Ethics, Research*
Humans
Information Dissemination / ethics*
Informed Consent / ethics
Psychology / ethics*
Research Design*
Research Subjects*