The 'Charter of Rights for Family Caregivers'. The role and importance of the caregiver: an Italian proposal

ESMO Open. 2017 Nov 4;2(5):e000256. doi: 10.1136/esmoopen-2017-000256. eCollection 2017.

Abstract

Cancer diagnosis not only shakes the lives of those who are affected, but also has impacts on the entire family system, which is involved as if it were itself an organism affected by cancer. The oncological illness may cause a breakdown of the existing balance in the family system and demands a progressive degree of mutual adaptation to family members. The 'VoiNoi' Listening Centre of the Campus Bio-Medico University Hospital in Rome has been close to caregivers for several years, to support them in the difficult task of providing assistance through individual or group psychological support therapy and health education. The 'Charter of Rights for Family Caregivers' stems from the experience gained over the years, with the aim of protecting, supporting and strengthening the role and the assistance activity that families carry out in support of their loved ones under conditions of fragility.

Keywords: burden; cancer; caregiver; psychological support..