Progress and Policy Opportunities in Family Caregiver Assessment: Results From a National Survey

J Appl Gerontol. 2019 Sep;38(9):1319-1341. doi: 10.1177/0733464817733104. Epub 2017 Sep 21.

Abstract

Family caregivers play an essential role in long-term services and supports (LTSS). Despite numerous calls for robust caregiver assessment policies to determine needs and treat them as partners in care planning, there has been limited information about whether or how states assess caregiver needs and strengths, or use caregiver information. Using cross-sectional survey data from the 2015 Process Evaluation of the Older Americans Act National Family Caregiver Support Program (NFCSP), this study analyzes caregiver assessment policies and practices in 54 State Units on Aging, 619 Area Agencies on Aging, and 642 local service providers. It examines whether and for what purposes caregiver assessments are used, what domains are included, and how well current policies conform to recommended practice. It also recommends that policy makers who influence NFCSP and other LTSS programs develop caregiver assessment practices using a multidimensional framework including more caregiver-focused domains and utilizing assessment data to measure program outcomes.

Keywords: National Family Caregiver Support Program; Stress Process Model; caregiver assessment; family caregivers; public policy.

Publication types

  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Aged
  • Caregivers / legislation & jurisprudence
  • Caregivers / organization & administration*
  • Cross-Sectional Studies
  • Family*
  • Health Policy / legislation & jurisprudence
  • Health Services Accessibility / legislation & jurisprudence
  • Health Services Accessibility / organization & administration
  • Health Services for the Aged / legislation & jurisprudence
  • Health Services for the Aged / organization & administration
  • Humans
  • Long-Term Care
  • Needs Assessment*
  • Surveys and Questionnaires
  • United States