Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

Miriam J Johnson; Armita Jamali; Joy Ross; Caroline Fairhurst; Jason Boland; Carla Reigada; Simon Paul Hart; Gunn Grande; David C Currow; Athol U Wells; Sabrina Bajwah; Thanos Papadopoulos; J Martin Bland; Janelle Yorke

doi:10.1136/thoraxjnl-2017-210911

Psychometric validation of the needs assessment tool: progressive disease in interstitial lung disease

Thorax. 2018 Sep;73(9):880-883. doi: 10.1136/thoraxjnl-2017-210911. Epub 2017 Nov 17.

Authors

Miriam J Johnson¹, Armita Jamali², Joy Ross³, Caroline Fairhurst⁴, Jason Boland¹, Carla Reigada⁵, Simon Paul Hart⁵, Gunn Grande⁶, David C Currow^{1

7}, Athol U Wells⁸, Sabrina Bajwah⁹, Thanos Papadopoulos¹⁰, J Martin Bland⁴, Janelle Yorke⁶

Affiliations

¹ Wolfson Palliative Care Research Centre, Hull York Medical School, University of Hull, Hull, UK.
² Specialist Trainee in Palliative Medicine, Pembridge Palliative Care Unit, London, UK.
³ St Christopher's Hospice, London, UK.
⁴ Department of Health Sciences, University of York, York, UK.
⁵ Hull York Medical School, University of Hull, Hull, UK.
⁶ Division of Nursing, Midwifery and Social Work, University of Manchester and The Christie NHS Foundation Trust, Manchester, UK.
⁷ Faculty of Heath, University of Technology Sydney, IMPACCT, Sydney, New South Wales, Australia.
⁸ Respiratory Medicine, Royal Brompton and Harefield NHS Trust, London, UK.
⁹ Cicely Saunders Institute, Kings College London, London, UK.
¹⁰ Kent Business School, University of Kent, Kent, UK.

Abstract

The inter-rater/test-retest reliability and construct validity of a palliative care needs assessment tool in interstitial lung disease (NAT:PD-ILD) were tested using NAT:PD-ILD-guided video-recorded consultations, and NAT:PD-ILD-guided consultations, and patient and carer-report outcomes (St George's Respiratory Questionnaire (SGRQ)-ILD, Carer Strain Index (CSI)/Carer Support Needs Assessment Tool (CSNAT)). 11/16 items reached at least fair inter-rater agreement; 5 items reached at least moderate test-retest agreement. 4/6 patient constructs demonstrated agreement with SGRQ-I scores (Kendall's tau-b, 0.24-20.36; P<0.05). 4/7 carer constructs agreed with the CSI/CSNAT items (kappa, 0.23-20.53). The NAT:PD-ILD is reliable and valid. Clinical effectiveness and implementation are to be evaluated.

Keywords: interstitial fibrosis; palliative care.

Publication types

Letter
Research Support, Non-U.S. Gov't

MeSH terms

Disease Progression*
Humans
Lung Diseases, Interstitial / complications*
Lung Diseases, Interstitial / diagnosis
Lung Diseases, Interstitial / therapy*
Needs Assessment
Observer Variation
Palliative Care*
Psychometrics
Reproducibility of Results