International Workshop:: Outcome measures and clinical trial readiness in primary mitochondrial myopathies in children and adults. Consensus recommendations. 16-18 November 2016, Rome, Italy

Affiliations

• ¹ Department of Experimental and Clinical Medicine, Neurological Institute, University of Pisa, Italy. Electronic address: mancusomichelangelo@gmail.com.
• ² Wellcome Trust Centre for Mitochondrial Research, Institute of Genetic Medicine, Department of Physiology and Functional Genomics NE1 3BZ, Newcastle University, Newcastle upon Tyne, UK.
• ³ Friedrich-Baur-Institut an der Neurologischen Klinik und Poliklinik, LMU München, Ziemssenstr. 1a, 80336 München, Federal Republic of Germany.
• ⁴ Department of Neurology, H. Houston Merritt Neuromuscular Research Center, Columbia University Medical Center, New York, NY, USA.
• ⁵ Institut de Recerca Sant Joan de Déu and CIBERER, Barcelona, Spain.
• ⁶ Bambino Gesù Hospital IRCCS, Rome, Italy.
• ⁷ University of Bergen & Haukeland University Hospital, Norway.
• ⁸ IRCCS Bellaria Hospital and University of Bologna, Italy.
• ⁹ Wellcome Trust Centre for Mitochondrial Research, Newcastle upon Tyne, UK.
• ¹⁰ Columbia University Medical Center, New York, USA.
• ¹¹ National Center for Advancing Translational Sciences, Bethesda, MD, USA.
• ¹² Friedrich Baur Institute, Munich, Federal Republic of Germany.
• ¹³ Kurume University School of Medicine, Kurume, Fukuoka 830-0011, Japan.
• ¹⁴ Radboud Center for Mitochondrial Medicine, Nijmegen, The Netherlands.
• ¹⁵ The Foundation "Carlo Besta" Institute of Neurology-IRCCS, Milan, Italy.
• ¹⁶ University of Pisa, Italy.
• ¹⁷ Universidad de Zaragoza, CIBERER, Instituto de Investigación Sanitaria de Aragón, Spain.
• ¹⁸ Asociación de Enfermos con Patologías Mitocondriales, Spain.
• ¹⁹ University of Angers, France.
• ²⁰ Institute of Human Genetics, Technische Universität München, Federal Republic of Germany.
• ²¹ UCL Great Ormond Street Institute of Child Health, London, UK.
• ²² MITOCON Association, Italy.
• ²³ Charité Campus Virchow Klinikum, Berlin, Federal Republic of Germany.
• ²⁴ Institute of Neurology, Catholic University, Rome, Italy.
• ²⁵ Weill Cornell Medicine, New York, USA.
• ²⁶ University of Florida, Gainesville, USA.
• ²⁷ President, International Mito Patients Association, The Netherlands.
• ²⁸ United Mitochondrial Disease Foundation (UMDF), Pittsburgh, USA.
• ²⁹ MRC-Mitochondrial Biology Unit, Cambridge, UK.