The patient with a complex chronic respiratory disease: a specialist of his own life?

Expert Rev Respir Med. 2017 Dec;11(12):919-924. doi: 10.1080/17476348.2017.1392242. Epub 2017 Oct 25.

Abstract

The independent and central role of the patient with a complex chronic respiratory disease in targeted, personalized disease management strategies is becoming increasingly important. Patients are the ones living with the disease and are finally responsible for their lives underlining their role as essential members of the interdisciplinary treatment team. Areas covered: The present paper narratively reviews existing research and discusses the special, as well as specialized, role of the patient with a complex chronic respiratory disease in the healthcare system and highlights fundamental elements of the (future) relationship between patient and healthcare professionals. Expert commentary: Since the chronic respiratory disease at hand is part of the patient's entire life, we need holistic, personalized approaches optimizing patients' quality of life by not only treating the disease but considering the patients' whole environment and where healthcare professionals and patients are co-creating value care.

Keywords: Chronic obstructive pulmonary disease; expert patient; self-management; shared decision making; value-based health care.

MeSH terms

  • Humans
  • Patient Participation*
  • Physician-Patient Relations*
  • Quality of Life*
  • Respiration Disorders / therapy*