Parents' experiences of their child being admitted to a paediatric intensive care unit: a qualitative study-like being in another world

Scand J Caring Sci. 2018 Mar;32(1):363-370. doi: 10.1111/scs.12470. Epub 2017 Aug 22.

Abstract

Background: There is very little research on the parent's experiences of having a child admitted to a paediatric intensive care unit. Identifying and describing 'such experiences' could facilitate better parental support from the paediatric intensive care team and help the parents manage a stressful situation.

Aims: This study aimed to describe parents' experiences of having their child admitted to a paediatric intensive care unit.

Methods: Interviews were conducted with 12 parents whose children had been admitted to a paediatric intensive care unit. A qualitative design was used, and the interviews were analysed based on content analysis.

Result: The analysis revealed two categories: 'being involved' and 'being informed' with seven subcategories: 'caring for the parents', 'security and trust', 'altering the parental role', 'stress and fear', 'the importance of knowing', 'interaction in the care process' and 'being prepared'. An overarching theme emerged: the experience was 'like being in another world'. The study concludes that a child's admission to a paediatric intensive care unit is a stressful situation, and for the parents to be able to handle the anxiety and stress, they need to be informed of and involved in their child's care.

Conclusions: The parents' experience when their child is admitted to a paediatric intensive care unit is fraught with a range of emotion and fear. There are indications that things such as good information, involvement and a positive experience of the transfer to the paediatric ward reduce the stress and anxiety associated with paediatric intensive care admission. The result of this study could be used as a basis for a post-paediatric intensive care follow-up service for the children and their families.

Keywords: content analysis; family-centred care; paediatric intensive care; parents' experiences; qualitative study.

MeSH terms

  • Adult
  • Critical Care / psychology*
  • Fear*
  • Female
  • Humans
  • Infant
  • Infant, Newborn
  • Intensive Care Units, Pediatric*
  • Male
  • Middle Aged
  • Parents / psychology*
  • Qualitative Research
  • Stress, Psychological*
  • Sweden