[Quality development within interdisciplinary transgender healthcare : Results and implications of a participatory research project]

Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz. 2017 Sep;60(9):999-1008. doi: 10.1007/s00103-017-2599-5.
[Article in German]

Abstract

Both internationally and nationally, the objective has been set to offer specialized, coordinated, and interdisciplinary treatment to individuals with rare clinical needs, such as trans individuals (e. g., transsexual, transgender). The Interdisciplinary Transgender Health Care Center Hamburg (ITHCCH) is the first and only center in Germany to integrate all disciplines relevant to trans healthcare (THC).The research project seeks to generate valid information to support quality development and assure high-quality treatment at the ITHCCH. This was done by (a) investigating needs and concerns of trans individuals regarding interdisciplinary THC, and (b) analyzing attitudes and interests of key stakeholders.Using a participatory approach involving a work group (representatives of trans support groups and local THC professionals), researchers developed an online survey focusing on trans individuals' needs and concerns. Data from N = 415 trans-identified participants were analyzed using quantitative and qualitative methods. In addition, a short survey was used to record key stakeholders' attitudes and interests towards the ITHCCH.Healthcare offers accessed by trans individuals as part of transition related treatment vary in focus and number. For example, take-up numbers of genital surgery differ between binary and non-binary trans individuals. Crucial aspects impacting on THC quality are structural characteristics, communication/social aspects, individuality, and professionalism/quality.To ensure successful, high-quality interdisciplinary THC, feedback from (potential) patients and stakeholders is crucial. In addition, both structural development and optimizing individuality and flexibility throughout the treatment process are key. This poses a considerable challenge to the sector of THC provision.

Keywords: Participatory research; Self-help; Transgender; Transition; Treatment.

Publication types

  • Review

MeSH terms

  • Adult
  • Delivery of Health Care, Integrated / organization & administration*
  • Europe
  • Female
  • Health Services Accessibility / organization & administration*
  • Health Surveys
  • Humans
  • Interdisciplinary Communication*
  • Intersectoral Collaboration*
  • Male
  • Quality Improvement / organization & administration*
  • Self-Help Groups
  • Sex Reassignment Procedures / psychology
  • Transgender Persons* / psychology