Experiences of Daily Life Among Adolescents With Asthma - A Struggle With Ambivalence

J Pediatr Nurs. 2017 Jul-Aug:35:23-29. doi: 10.1016/j.pedn.2017.02.005. Epub 2017 Mar 7.

Abstract

Objective: There is limited knowledge about how adolescents with asthma view their disease in daily life and how these views impact on management. The aim of this study was to describe experiences of daily life, with particular focus on thoughts, feelings and management of adolescents with asthma.

Methods: In this qualitative study, data were obtained from 10 interviews with adolescents (aged 16-18 years) with asthma recruited from the Swedish population-based prospective birth cohort, BAMSE. Data were analysed through Systematic Text Condensation.

Results: Experiences of daily life among adolescents with asthma were defined in four categories: Insight and understanding; Asthma not the focus of daily life; Being acknowledged and, Being affected by asthma symptoms. The adolescents had developed an insight into and understanding of their disease, but did not want asthma to be the focus of their daily lives. The adolescents wanted their asthma to be acknowledged, but not to the point that they were defined by their asthma. They reported having many asthma symptoms, especially during physical activity, but also described a desire to feel healthy, "normal" and like their peers.

Conclusions: Having asthma in adolescence involves several struggles with ambivalence between adapting socially, feeling healthy and managing one's asthma.

Implications in clinical practice: The provision of person-centred care may be one way to handle the ambivalence among adolescents with asthma and thereby help them to manage their asthma.

Keywords: Adolescence; Asthma care; Daily life experiences; Person-centered care.

MeSH terms

  • Adaptation, Psychological*
  • Adolescent
  • Adolescent Behavior / psychology*
  • Asthma / psychology
  • Asthma / therapy*
  • Attitude to Health
  • Female
  • Health Behavior*
  • Humans
  • Male
  • Quality of Life / psychology*
  • Self Care / psychology*
  • Surveys and Questionnaires
  • Sweden