The experience of facilitators and participants of long term condition self-management group programmes: A qualitative synthesis

Stephen Hughes; Sophie Lewis; Karen Willis; Anne Rogers; Sally Wyke; Lorraine Smith

doi:10.1016/j.pec.2017.06.035

The experience of facilitators and participants of long term condition self-management group programmes: A qualitative synthesis

Patient Educ Couns. 2017 Dec;100(12):2244-2254. doi: 10.1016/j.pec.2017.06.035. Epub 2017 Jul 1.

Authors

Stephen Hughes¹, Sophie Lewis², Karen Willis³, Anne Rogers⁴, Sally Wyke⁵, Lorraine Smith⁶

Affiliations

¹ Faculty of Pharmacy, University of Sydney, Australia. Electronic address: stephen.hughes@sydney.edu.au.
² Faculty of Arts and Social Sciences, University of NSW, Australia.
³ Royal Melbourne Hospital, LaTrobe University, Australia.
⁴ Faculty of Health Sciences, University of Southampton, United Kingdom.
⁵ Institute for Health and Wellbeing, College of Social Sciences, University of Glasgow, United Kingdom.
⁶ Faculty of Pharmacy, University of Sydney, Australia.

PMID: 28711415
DOI: 10.1016/j.pec.2017.06.035

Abstract

Objective: Our aim was to systematically review the qualitative literature about the experiences of both facilitators and participants in a range of group-based programmes to support the self-management of long-term conditions.

Methods: We searched 7 databases using the terms 'self-management', 'group' and 'qualitative'. Full text articles meeting the inclusion criteria were retrieved for review. A thematic synthesis approach was used to analyse the studies.

Results: 2126 articles were identified and 24 were included for review. Group participants valued being with similar others and perceived peer support benefits. Facilitators (HCP and lay) had limited group specific training, were uncertain of purpose and prioritised education and medical conformity over supportive group processes and the promotion of self-management agency and engagement. Overall, studies prioritised positive descriptions.

Conclusion: Group programmes' medical self-management focus may reduce their ability to contribute to patient-valued outcomes. Further research is needed to explore this disconnect.

Practice implications: This review supports broadening the scope of group-based programmes to foreground shared learning, social support and development of agency. It is of relevance to developers and facilitators of group self-management programmes and their ability to address the burden of long-term conditions.

Keywords: Chronic; Experience; Qualitative synthesis; Self-management.

Publication types

Review

MeSH terms

Chronic Disease / psychology
Chronic Disease / therapy*
Disease Management*
Humans
Peer Group*
Qualitative Research
Self Care / psychology*
Self-Help Groups*
Self-Management*
Social Support*