Care Arrangements in Dementia Care Networks: Findings From the DemNet-D Study Baseline and 1-Year Follow-Up

J Aging Health. 2018 Jul;30(6):882-903. doi: 10.1177/0898264317696778. Epub 2017 Mar 15.

Abstract

Objective: This study was conducted to describe care arrangements for persons with dementia (PwDs) who are living at home with the support of a dementia care network (DCN).

Method: Data on the utilization of formal and informal support were collected in face-to-face interviews at baseline and 1-year follow-up with PwDs and caregivers receiving support from 1 of 13 DCNs.

Results: Men with dementia were supported by twice as many informal caregivers as women (2 vs. 1, respectively, p < .001). Regional differences were found in home-care nursing services, social care groups, companion home services, and day care. The care situations were considered stable by most caregivers.

Discussion: DCNs appear to contribute to a high degree of perceived stability in care situations. Future research should investigate possible gender differences in informal support networks. DCNs should continue their efforts in making low-threshold services in rural areas available and accessible.

Keywords: dementia; formal care; informal caregiver; network; structured support.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Aged
  • Aged, 80 and over
  • Caregivers*
  • Community Networks*
  • Day Care, Medical / statistics & numerical data*
  • Dementia / epidemiology
  • Dementia / therapy*
  • Female
  • Follow-Up Studies
  • Germany / epidemiology
  • Home Care Services / statistics & numerical data*
  • Home Nursing / statistics & numerical data*
  • Humans
  • Interviews as Topic
  • Male
  • Prospective Studies
  • Sex Factors