Exploring the Experiences of Living With Stroke Through Narrative: Stroke Survivors' Perspectives

Glob Qual Nurs Res. 2016 May 5:3:2333393616646518. doi: 10.1177/2333393616646518. eCollection 2016 Jan-Dec.

Abstract

Chronic illness models are normally used to explain and predict the experience of living with a long-term condition. The aim of this study was to present the findings of narrative interviews with stroke survivors and their family carers to understand their experiences of stroke. We interviewed five people with stroke and three family carers from the United Kingdom. We used thematic analysis to generate themes from their narrative accounts and then linked them to broader theoretical perspectives while influenced by the concept of reinterpretation of life. The narrative accounts of participants are mainly structured based on how their changed bodies poststroke changed their identities and roles and consequently their relationships with others. In this study, we underline the need for using methods like narrative to explain strategies that people use to make sense of their experiences of living with a long-term condition such as stroke.

Keywords: care; embodiment/bodily experiences; experiences; illness and disease; interviews; lived experience; long term; narrative inquiry; qualitative; relationships; research; stroke.