Prioritisation of future research topics in paediatric palliative care in Ireland: a Delphi study

Int J Palliat Nurs. 2017 Feb 2;23(2):88-97. doi: 10.12968/ijpn.2017.23.2.88.

Abstract

This paper reports the findings from a Delphi Study undertaken to identify the research priorities in children's palliative care in Ireland. Palliative care for children is a small and highly specialised field of healthcare that focuses on improving the quality of life of children living with, or dying from, a life-limiting condition. Ideally, support for children requiring palliative care begins at the time of diagnosis, which for many children with life-limiting conditions can be from birth. There is a notable overlap between the needs of children requiring palliative care and those with disabilities and other complex care needs, resulting in care being provided by a range of voluntary and statutory agencies. As a new specialty, there is a need to develop an evidence-based approach to providing children's palliative care. In order to do this in a systematic way, identification of the research priorities in children's palliative care within Ireland is required.

Keywords: Children; Delphi study; Life-limiting conditions; Research priorities.

MeSH terms

  • Databases, Factual
  • Delphi Technique
  • Health Services Needs and Demand
  • Hospice Care
  • Humans
  • Ireland
  • Palliative Care*
  • Parents
  • Pediatrics*
  • Quality of Life
  • Research*
  • Siblings
  • Terminal Care